| Forum name |
Topics |
Posts |
Last post |
| « ISOTRETINOIN(Accutane/ RoAccutane/Accure/Sotret/Amnesteem/Claravis) Has A Higher Risk for Birth Defects Than Any Other Drug On The Market » |
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Post Your Questions/Comments
You can talk about anything here
» Moderator: MOM |
21 |
78 |
June 23rd, 2008, 2:42pm
by MOM |
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Product Information/Regulation
FDA Meetings; Roche product documentation for Accutane--warnings; FDA Plans for Pregnancy Prevention
» Moderator: MOM |
14 |
24 |
June 23rd, 2008, 2:40pm
by MOM |
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Establishing Risk & Frequency of Occurance
Published articles re: Accutane as a teratogen; types of defects; numbers of exposed children; also about teratogenicity of the New Formula 23; Tretinon; topical retiniods; vitamin a
» Moderator: MOM |
9 |
30 |
August 25th, 2006, 5:23pm
by MOM |
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Newspaper Articles & Other Media RE: Birth Defects
Reports of birth defects and FDA meetings/actions and Roche comments, etc re: the risks of birth defects caused by Accutane; lawsuits; etc.
» Moderator: MOM |
41 |
71 |
June 18th, 2008, 7:30pm
by MOM |
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Pregnancies Continue to Occur
Tracking occurrance of pregancies during Accutane treatment; Pregnancy Prevention; recommendations for prescribing to women
» Moderator: MOM |
6 |
21 |
June 23rd, 2008, 3:59pm
by MOM |
| « Research Abstracts » |
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Characteristics of Accutane Embryopathy
Types of malformations; similar genetic syndromes;
» Moderator: MOM |
15 |
48 |
May 3rd, 2008, 9:50pm
by MOM |
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Teratogenic Actions On the Embryo
HOW does Accutane cause birth defects?...critical time periods; neural crest cells; genes; metabolites; isomers; receptors; cell death;
» Moderator: MOM |
15 |
32 |
August 25th, 2006, 5:12pm
by MOM |
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Cerebellum Development
Research Abstracts re: process of prenatal development--cells, receptors, timing, etc.
» Moderator: MOM |
8 |
19 |
February 20th, 2007, 9:26pm
by MOM |
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Normal Prenatal Development
background re: stages of prenatal development
» Moderator: N/A |
2 |
2 |
September 6th, 2002, 7:04pm
by MOM |
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Miscellaneous Research
Abstracts that don't fit under the above categories
» Moderator: N/A |
2 |
5 |
September 20th, 2007, 5:58pm
by MOM |
| « Related News » |
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Miscellaneous Media Coverage
New updates & discussions; information from other internet forums; TV coverage;
» Moderator: N/A |
29 |
35 |
May 28th, 2008, 9:18am
by MOM |
| « Share YOUR PERSONAL STORIES about a child/children exposed to ITR in utero » |
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Your Child Affected by Accutane
please tell us about your child: age, time of exposure to drug; MRI results; disabilities; illness; school; therapies; meds; questions; joys; successes; strengths; etc.
» Moderator: MOM |
5 |
13 |
January 10th, 2004, 5:11pm
by MOM |
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My Interviews with Parents of Kids with ITR Embryopathy
Information other parents have shared with me about their children; (names are not included); posts by parents on other forums; disabilities in children by parents who used accutane PRIOR to pregancy;
» Moderator: MOM |
1 |
6 |
July 11th, 2006, 9:47pm
by MOM |
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Adults Who Were Exposed Prenatally
If you were exposed before birth to isotretinoin (accutane or any other brand name) please share your story. There is no documentation about what to expect re:adult life for our children and it would be very helpful to hear from you. This is also an opportunity for you to connect w/others in your situation. THNAK YOU!! (if you don't want to use your name, initials are fine!).
» Moderator: N/A |
4 |
7 |
March 28th, 2008, 4:37pm
by MOM |
| « Parent Support / Resources » |
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Resources for Families
support groups for related disabilities; links to various resources;
» Moderator: N/A |
5 |
5 |
December 13th, 2005, 9:52am
by MOM |
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Daily Living with Accutane Embryopathy
assistive technology; therapy options; surgery options; special education
» Moderator: N/A |
5 |
16 |
December 12th, 2006, 1:47pm
by MOM |
| « Share YOUR INFORMATION about Isotretinion Embryopathy » |
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Un-Researched / Un-Documented Characteristics of Accutane Embryopathy
There are some consistant anecdotal problems with our children for which there has been no research or official documentation done. Some of these are listed; please add your comments and any other characteristics not listed.
» Moderator: N/A |
12 |
16 |
March 12th, 2008, 10:56am
by MOM |
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Professionals
Even if you wish to remain anonymous, please share the role you have had with children exposed to accutane prenatally: teacher/therapist; research; doctor; ect.and any information you can add re: isotretinoin and birth defects. THANKS!
» Moderator: N/A |
5 |
10 |
October 18th, 2006, 8:41pm
by MOM |
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Parents/Others
Please share research and other information that you have learned about accutane birth defects; how accutane works in the body; whether restrictions on prescribing accutane are being followed, learning and health issues, etc.
» Moderator: MOM |
2 |
2 |
July 23rd, 2004, 5:50am
by bobby12 |
| « Unpublished Reports/Summaries of Research » |
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Summary of Characteristics, Compiled from various sources
breakdown of types of anomolies; IQ scores;
» Moderator: MOM |
3 |
4 |
September 3rd, 2006, 9:36am
by MOM |
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Making Sense of It All
my personal attempts to draw the pieces from various research abstracts together into a summary.
» Moderator: MOM |
7 |
13 |
March 8th, 2007, 8:59pm
by MOM |
Accutane Embryopathy / Birth Defects from Accutane / / Isotretinoin (ITR) Embryopathy / Retinoic Acid Embryopathy / Isotretinoin Teratogen Syndrome / Fetal Retinoid Syndrome / Accutane Dysmorphic Syndrome / Children & Adults With Isotretinoin Birth Defects (Accutane, RoAccutane, Amnesteem, Claravis, Sotret) 
